Quick facts about Retinitis Pigmentosa

Nearly 1 in 3000 people are born with the condition

Nearly 1 in 3000 people are born with the condition

The condition can greatly vary between every diagnosis

The condition can greatly vary between every diagnosis

Often referred to as “tunnel vision”

Often referred to as “tunnel vision”

Image of the Brisbane skyline

Normal Vision

An example of how the Brisbane skyline might look to someone with Retinitis Pigmentosa

Retinitis Pigmentosa

Understanding Retinitis Pigmentosa

Retinitis Pigmentosa (also known as RP) is an inherited degenerative condition that affects the retina, which is the light sensitive part of the eye. It damages the cells that transmit light to the brain via the optic nerve, meaning people affected lose the ability to transmit what their eye is seeing to their brain.

This form of vision loss is often referred to as “tunnel vision”, as the centre of vision usually remains but it is like looking through a straw. People affected by Retinitis Pigmentosa usually begin to notice their sight deteriorating in their teenage years. While the condition can vary greatly from person to person, it can result in total blindness.

Effects of Retinitis Pigmentosa

Most people with Retinitis Pigmentosa experience the gradual loss of peripheral vision. They may also have difficulty with night vision and in environments with low lighting.

The effects of Retinitis Pigmentosa can include:

  • Tripping over or bumping into objects
  • Glare and light sensitivity
  • Limited view of objects
  • Seeing only a portion of your normal vision
  • Difficulty noticing objects at ground level or above head height
  • Struggling to see in low light conditions

Roy’s Story

Roy’s Story

“Having a Guide Dog gives me extra incentive to make the most of every day and I can’t wait to see what the future holds with ‘Alanna’.”

Roy,
Guide Dog handler
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Who is at risk?

Retinitis Pigmentosa is hereditary and typically occurs in people who have a family history of the condition. Relatives of people with Retinitis Pigmentosa should have regular eye examinations as a precaution, however unfortunately there is currently no known cure for the disease.

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Guide Dogs Queensland’s services are a vital part of our local eye care network, helping to ensure vision impaired patients receive the best medical care and the latest rehabilitation expertise and technology.

Martin Hodgson
Optometrist

Alanna is here to guide you through your options and help connect you with the right support.

Phone
Call 1800 810 122
Address
Guide Dogs Queensland Breeding and Training Centre
1978 Gympie Rd, Bald Hills Qld 4036
Office
Monday - Friday | 8:30am - 4:30pm
Contact
Contact Client Services online
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